Extensive resources exist to assist in the care of persons living and dying with dementia.  This is a collection of Federal, State and local resources I found helpful in my journey of caregiving and advocating for my mother.  This is not a complete list but does provide a starting place.  Often there is no time to do research or sift through thousands of articles and resources when in the midst of a crisis or the daily duties of caregiving, and advocating for those living and dying with dementia in all care settings. 

National Association of Adult Day Services
Administration on Aging
Provides a comprehensive overview of a wide variety of topics, programs and services related to aging.  

Institute for Caregiver Culture Change Education
Alliance for Retired Americans  
Advocates for social and economic justice and full civil rights for all citizens so that they may enjoy lives of dignity, personal and family fulfillment and security.     

Alzheimer’s Association   
Works to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

American Health Care Association Nonprofit national association representing health care providers, nursing homes and assisted living facilities with chapters in each state.  Idaho Health Care Association is a chapter of the AHCA.

American Psychiatric Nurses Association    
Committed to the specialty practice of psychiatric-mental health nursing, health and wellness promotion through identification of mental health issues, prevention of mental health problems and the care and treatment of persons with psychiatric disorders.
Centers for Medicare & Medicaid Services.   Ensures effective, up-to-date health care coverage and promotes quality care for beneficiaries.
URAC  Independent, nonprofit organization, a leader in promoting health care quality through accreditation, education and certification programs.
Eldercare Web   
Eldercare planning assessment, resources for caregivers, Alzheimer's research updates 
National Long Term Care Ombudsman Center
Idaho Administrative Code Nursing Home Regulations  
Idaho Nursing Home and Assisted Living Survey   
Pioneer Network

Alzheimer's Foundation
Rhode Island Quality Partners ~ Culture Change
Idaho Health and Welfare Contacts / Regions
Idaho Qualis Health (Quality Improvement Organization)
National Consumer Voice for Quality Long-Term Care
Joint Commission on Accreditation of Healthcare Facilities
(JACHO)